I have been searching for answers and settled for none since around 2008, although my symptoms began some time before. I have suffered from GI symptoms (mainly nausea and/or vomiting) after meals for a few years, but still no answers. I had my gallbladder removed, and things progressed like never before. I thought I was dying in December 2008; I know it sounds dramatic, but I vividly remember thinking it was true. Obviously it wasn’t. 🙂
My after-meal-ritual soon became one of getting extremely nauseous, often even dry-heaving, and then just feeling chronically tired and sick in general. I can’t explain the fatigue I feel after a meal. Too many times, I have asked friends at dinner, “whew, do you all feel tired after eating?” and was always told “yes, everyone does.” Not like this, friends.
I quickly came to believe that everyone always felt the way I did, and that quaility of life here on earth was nothing to envy. Still, I can’t even begin to count the number of times Ryan and I have come home from a dinner date that has made me feel miserable, only for me to cry in his arms and insist that I “have a disease” and that “something is seriously wrong with me.” Once my symptoms subside, I chalk it up to my dramatic flair, and repeat this cycle the next day.
I did not realize what I was secretly causing what I believe to be every single one of my symptoms. A little over a week ago, my gastroenterologist performed an upper endoscopy on me, and took a biopsy of my small intestine. This was my third or fourth upper endoscopy, so why this one was so different, I don’t know. It was the only one done by an actual GI doctor. Friday after work, I received a voicemail saying that I needed to go in for some lab work because of my biopsy results. I immediately sent a text to my friend who is a nurse, and asked her what exactly that could mean. She responded with a variety of options, and I began googling them all. Each one listed symptoms that did not describe my life.
And suddenly a word popped into my mind: Celiac. I actually knew quite a bit about Celiac just from researching my symptoms for so many years, but it never clicked the way it did this weekend. Every single symptom lines up with what I have been experiencing for quite some time. I never made a connection between all of the random things I thought were “wrong with me” until I started researching the symptoms more in-depth. Random problems I’ve had since I was young, and random symptoms that developed later: canker sores, joint pain, back problems, chronic fatigue. In fact, sleeping for 9-10 hours and difficulty waking after naps are listed as symptoms, and are also true for me. This hasn’t always been the case, but for the past year or so, it has been. And then I talked to my mom. I told her that Celiac is genetic, but nobody in our family has it. She told me that my young cousin was just recently diagnosed with Celiac, and for me, that sealed the deal.
I convinced myself over the weekend that it had to be Celiac. Sunday night I started freaking out that come Monday, they would tell me something different. I told my husband that I would be devastated if that were the case, because it seems to be perfect and explains so much.
I called Monday morning to set up my labs, and I shyly asked if they could tell me what was going on. Her response: “Celiac Sprue.” My response: “Oh thank God.” The letter I received in the mail from the clinic says that it is a “possibility” and they need my blood work before they can diagnose me. Even if my blood work comes back negative, I am fully, 100% confident that I have finally found my answer.
Here’s to a new life. One with joy, and health. One without anxiety and tears over “what is wrong with me?” I encourage you to read what the Mayo Clinic’s website has to say about Celiac. It describes my life so accurately; I’m still in disbelief. I have been searching for answers for so long.
This is truly a gift from God. I will elaborate on that later, but I know this: I am no longer a glutton for gluten. I am sure there will come a day where I will want it so badly I can’t stand it, which is part of my motivation for writing this. I do not want to forget how miserable it made me.
Gluten free since Monday evening, January 7, 2013. Praise. The. Lord.